The LeDeR Programme supports local areas in England to review the deaths of people with learning disabilities aged 4 years and over.

Its main aims are:

  • To support improvements in the quality of health and social care service delivery for people with learning disabilities.
  • To help reduce premature mortality and health inequalities for people with learning disabilities.

A confidential telephone number and website enables families, health and social care providers and other key people to notify the LeDeR team of the death of someone with learning disabilities.

An initial review of the death will then take place. The purpose of this is to provide sufficient information to be able to determine if there are any areas of concern in relation to the care of the person who has died and if indicate, a more in-depth, multiagency review will then be conducted to see if any further learning could be gained that would contribute to improving practice.  The reviews also identify areas of good practice which can be shared.

As part of the review, the local reviewer would speak to family members, friends, professionals and anyone else involved in supporting the person who has died to find out more about their life and the circumstances leading to their death.